½ðºÌÓéÀÖ³Ç

At ½ðºÌÓéÀÖ³Ç, our work is rooted in a culture of dialogue, collaboration, and respect. These tenets allow us to forge bonds with the people we serve and those who know their challenges best, ensuring that our work can have the greatest possible impact.

During Myasthenia Gravis Awareness Month, ½ðºÌÓéÀÖ³Ç recommits to addressing the challenges of the myasthenia gravis community by continuing to invest in meaningful partnerships to deliver valuable solutions for the patients we serve.

Part of that partnership and collaboration for ½ðºÌÓéÀÖ³Ç is showing up: being there to listen to patients, to not only learn more about them but also from them. ½ðºÌÓéÀÖ³Ç is there to amplify the voices of patients, so that there can be greater understanding and awareness for those living with rare conditions, such as myasthenia gravis. 

Kimberly Moran, Ph.D., Head of U.S. Rare Disease, recently had a chance to have a Q&A with Alexis Rodriguez, who was diagnosed with myasthenia gravis 25 years ago. She listened to Alexis about how the journey living with a rare disease is complex and how every patient is different. They discussed how people living with myasthenia gravis are seeking more resources and education on this rare condition.