Patients

Closing the Knowledge Gap: Including Pregnant and Breastfeeding Individuals in Clinical Trials

Chiara Vona — Mon, 18 Dec 2023 09:12:05 +0000

Closing the Knowledge Gap: Including Pregnant and Breastfeeding Individuals in Clinical Trials

Laura Shaughnessy, ��ֳ� Clinical Program Director

Chiara Vona Mon 18/12/2023 - 10:12

For too long, significant data gaps around the use of medicinal products during pregnancy and breastfeeding have impeded healthcare decision-making. This lack of information is particularly challenging for individuals living with chronic diseases during the stages of pregnancy and breastfeeding, as it does not all allow for an informed dialogue with their healthcare providers (HCPs) about optimal management and treatment of their diseases at those times.

As a member of the E21 Expert Working Group (EWG), a part of The International Council for Harmonisation of Technical Requirements for Pharmaceuticals for Human Use (ICH), I am proud to be part of efforts to change this paradigm. It is high time all individuals, regardless of reproductive status, have access to the most effective treatments and information to make better decisions.

The E21 EWG was formed to create a new guideline for the inclusion of pregnant and breastfeeding individuals in clinical trials (CTs) – one that harmonises strategies and methodologies to ensure the appropriate inclusion and/or retention of pregnant and breastfeeding individuals in CTs.

This new efficacy guideline will provide a globally accepted framework and best practices to enable inclusion and/or retention of pregnant and breastfeeding individuals in clinical trials – including practical guidance for planning trials that include pregnant and breastfeeding individuals, as well as comprehensive communication and stakeholder engagement plans.

A global-level agreement is needed to improve the situation for pregnant and breastfeeding individuals who need medicines, and to be inclusive of all patient populations. This will help reduce the risk of prescribing medicinal products without adequate evidence in these patient populations. The guideline, based on globally accepted principles, will be implementable worldwide, thereby promoting inclusive patient care and ensuring ethical data generation in global trials.

This work is more than just a professional responsibility; it is a moral imperative. ��ֳ� is committed to improving the care for pregnant and breastfeeding individuals of childbearing age by addressing any gaps in knowledge. These individuals have often been overlooked in the past, but they are a crucial part of the patient population, and we believe that they deserve access to information that empowers them to make optimal disease management decisions throughout their reproductive journey.

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Building trust: The crucial bridge between AI and healthcare

Chiara Vona — Fri, 15 Dec 2023 08:58:16 +0000

Building trust: The crucial bridge between AI and healthcare

Colin Lake, Digital Care Transformation Neurology

Chiara Vona Fri 15/12/2023 - 09:58

For three decades, we’ve been committed to people living with epilepsy and their families, surrounding the patient and caregiver through every step of their care journey. In the ever-evolving healthcare landscape, Artificial Intelligence (AI) and the digitalization of healthcare, is set to create new standards and advancements in care for people living with epilepsy and rare epileptic syndromes. This digitalization is revolutionizing the way we understand and approach these complex neurological disorders, with AI helping us to push the boundaries of healthcare and drug development by enabling us to support more precise diagnoses, detect patterns and trends, and aid disease prevention.

However, the successful integration of AI into healthcare relies heavily on a foundation of trust – trust from the public, medical professionals, and caregivers. We understand that this trust has improved drastically over the past few years, with events like COVID-19 necessitating remote digital healthcare, but there remains a distrust in the public domain. The main questions we are being asked are “Where is my data being used?”, “Who is looking at my data?” and “How will my data be used?”

Because of this, it is our role as experts in neurology to address these questions and be transparent. While the challenge of trust is not specific to ��ֳ� but industry-wide, we are continuously working to build that trust with patients, caregivers, and medical professionals.
Collaboration and partnerships are an essential way to build trust, and we know that we cannot do this alone. We must turn to expert digital partners, such as Microsoft, to support us on this journey. The continuous work we do together establishes a strong foundation for the future and landscape of neurology.

One example of how we’re using AI is the development of wearable technology – being able to track movement disorders not only helps patients but also increases our own understanding of how they manage their condition. The development of this technology also allows us to monitor patient data in real-time but has also enabled us to engage with a larger, more diverse patient pool within remote clinical trials. We can collect more data and ensure we secure better equity around patients, effectively reaching underserved populations.

Another area we are currently exploring is the use of ‘Digital Twins’ - a digital copy - to accurately reflect a physical human brain. The use of this modeling technology could assist in identifying the pattern of symptomatic behaviors such as seizures and, in principle, help medical professionals to individualize treatment based on the simulated behavior to predict how a specific patient might react to treatment.

Given the digital landscape is evolving rapidly, we must keep up with the pace and constantly look at ways we can digitalize our offering to secure a better outcome for our patients. It has never been more important to provide the best outcome for a patient across their entire journey and digital technology can help us achieve that.

innovation

science Patients Artificial Intelligence

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��ֳ�Cares: The Human Touch

Vandenbruaene Nathalie — Mon, 11 Dec 2023 09:10:21 +0000

��ֳ�Cares: The Human Touch

Pascal Songhet, ��ֳ�Cares

Vandenbruaene … Mon 11/12/2023 - 10:10

In the heart of ��ֳ�, where science meets humanity, there exists a department that aims to offer a compassionate, understanding and human touch: ��ֳ�Cares. A department using an unsolicited approach, dedicated to provide people living with severe diseases and healthcare professionals with helpful information and materials in response to their questions. Just a phone call away. Real people across the globe, offering help and support in an empathic way. Acting as one team, one community to empower their callers and improve the treatment experience.

Let us offer you a glimpse into the world of Maria del Mar Duran, one of the dedicated agents at ��ֳ�Cares Iberia.

The Role of Compassion in Healthcare

"My job makes me happy, because I really feel I can help people"

Maria is representative of this balance between a compassionate approach and strong expertise. With fifteen years of experience, she is a kind, calm person and a good listener who tries to instill an atmosphere of trust in every professional contact she has.

Her role goes beyond addressing queries; it's about connecting with people living with severe diseases on a human level. Maria's day-to-day responsibilities involve offering support and information to people reaching out to ��ֳ�. Always with a touch of compassion that only someone genuinely invested in their wellbeing could provide.

Understanding Patient Needs

"I start every conversation with an open heart and an open mind."

Maria's interactions range from addressing questions that healthcare professionals have regarding research on certain medicines or treatments to providing a comforting voice during challenging times for people that are facing the disease, be it themselves or someone close to them.

Whether it's finding the right research document or just lending an ear, Maria approaches each question with an understanding that each patient's needs are as unique as their stories. Her sensitivity to these needs – both spoken and unspoken – is what creates the unique care she and her team provide every day.

The Balancing Act

"I prefer to stay as professionally close as I can."

Maria's job, though fulfilling, comes with its own set of challenges. Communicating about medication shortages for example requires a delicate mix of honesty and sensitivity. And since promotion of drugs or giving medical advice is not her role and not allowed, she struggles sometimes to provide people with a way to move forward.The rewards, however, are immeasurable. “The gratitude of a reassured patient, the satisfaction in a doctor's voice, that's what makes it all worthwhile,” she shares. Being able to provide with the contact information of a patient organization, or correct educational information is sometimes just what people need. Maria and her team, with their emotional resilience and professional dedication, exemplify the core values of ��ֳ�, a true testament to our commitment to making a significant impact in healthcare.

��ֳ�'s Role in Facilitating Care

Behind Maria's success is ��ֳ�'s steadfast support. ��ֳ� equips their agents with extensive training and resources, ensuring they can offer the best care possible. A comprehensive customer relationship management system is available, offering robust tools for managing interactions with callers. This system not only provides accurate and relevant product information but also integrates seamlessly with other platforms to monitor, track, and report any serious issues that people may encounter. In this way the ��ֳ�Cares team is able to maintain high standards to ensure compliance and provide the best possible assistance to their callers.

Real-Life Impact

One memorable story Maria shares is of a young father worrying about his daughter's recent epilepsy diagnosis. He was specifically worried if she were to have seizures in places like school where he would not be able to help her. Through her conversations, Maria offered hope, telling him about the special awareness campaign in Spain. She was able to send him to a specific ��ֳ� website, dedicated to normalize epilepsy, where schools can sign up to download many educational materials such as videos and comics. These can then be used to inform teachers and pupils about epilepsy. The father was happy to be able to pass this information on to the school so they would know what a seizure is, not to be afraid of it and understand what to do. And his daughter, she is now in a school that understands what she is going through. Just one of the countless lives Maria has touched.

"At the end of this very long call I could really feel the impact on this family’s quality of life. Like I switched on a little light in a dark place."

A Personal Mission

For Maria, working at ��ֳ�Cares is more than just a career; it's a personal mission. Driven by a passion to help others, every call and every patient is an opportunity to make a meaningful impact. "It's about being more than an agent; it's about being a part of someone's life," Maria says with conviction.

At ��ֳ�, we feel very proud to have people like Maria work for us. And we are equally proud that this is what we stand for. A personal, warm and heartfelt healthcare. Through an outstanding dedicated and individual support service that goes the extra mile.

Or, as Maria said it: "At ��ֳ�Cares, we don't just offer solutions; we offer a part of ourselves. Every patient's story becomes a part of our own, and in helping them, we find our true purpose."

You can read more about ��ֳ�Cares here ��ֳ�Cares | ��ֳ�

about ucb

��ֳ�Cares Patients People living with severe diseases Healthcare professionals

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Advancing patient-focused scientific leadership at American Epilepsy Society Annual Meeting

Chiara Vona — Fri, 01 Dec 2023 08:40:35 +0000

Advancing patient-focused scientific leadership at American Epilepsy Society Annual Meeting

Mike Davis, Head of Global Epilepsy

Chiara Vona Fri 01/12/2023 - 09:40

I’ve been lucky to work for ��ֳ� in the field of epilepsy for more than two decades, and over that period we have established ourselves as leaders in developing innovative medicines and transforming outcomes for people living with epilepsy, and their families. We do not take this responsibility lightly, recognising the importance of meeting real-world needs and ensuring our work is as valuable to as much of the epilepsy community as possible. We are constantly asking questions of ourselves, holding each other to account on behalf of all the lives that we touch.

At this year’s American Epilepsy Society (AES) Annual Meeting in Orlando, USA, the research we are presenting is reflective of that ongoing commitment. We are showcasing 29 abstracts, including 4 late breakers, covering early research, clinical, health economic, and demographic studies in epilepsy.

It’s a truly broad data set, providing new insights in areas such as Dravet syndrome, Lennox-Gastaut syndrome, epilepsy and pregnancy, focal-onset seizures, SUDEP, and for individuals who experience prolonged seizures, all with a focus on elevating epilepsy care today. We also touch on potential treatments of tomorrow, presenting some of our early discovery research work in our ongoing pursuit of treatments that could one day alleviate the underlying causes of epilepsies. We also explore factors contributing to health disparities amongst those living with epilepsy, and what can be done to bring about change.

This year, we are also excited to be partnering with the AES as the exclusive sponsor of components of their Diversity, Equity, and Inclusion (DE&I) initiatives at the AES 2023 Annual Meeting. This collaboration signifies our shared values and commitment to fostering an environment of inclusivity, diversity, equity, and excellence. Through this collaboration, ��ֳ� supports AES's aim to provide essential career support for both current and emerging epilepsy scientists and clinicians who belong to historically underrepresented groups and underserved populations. By doing so, we seek to bridge gaps and promote equitable opportunities within the epilepsy community.

We are proud of the innovation and impact we have been able to deliver over the past three decades, and we will continue to reimagine how we care for patients, and to progress science that can impact real, unmet needs. If you’re attending the AES Annual Meeting this week, please do come and say hello at the ��ֳ� booth, to carry on the conversation on how we can do more for patients.

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Patients epilepsy AES

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Empowering Women of Childbearing Age: A Patient-HCP Multidisciplinary Collaboration to Enhance Care for WoCBA

Chiara Vona — Wed, 29 Nov 2023 09:18:23 +0000

Empowering Women of Childbearing Age: A Patient-HCP Multidisciplinary Collaboration to Enhance Care for WoCBA

Ágnes Koncz, Global Medical Affairs Lead of WoCBA

Chiara Vona Wed 29/11/2023 - 10:18

Women of childbearing age (WoCBA) living with chronic diseases such as rheumatoid arthritis, axial spondyloarthritis, psoriasis, epilepsy, and multiple sclerosis continue to face significant healthcare challenges, despite rapid advancements in the medical field. More than ever, identifying how to enhance the healthcare experience of these women is a priority.

With that in mind, ��ֳ� partnered with patients representing multiple chronic diseases and specialist healthcare professionals (HCPs) spanning rheumatology, neurology, dermatology, psychology, and obstetric medicine across the globe. Together, we discussed how we can address challenges faced by women of childbearing age living with various chronic diseases and proposed comprehensive solutions.

Four primary unmet needs in the healthcare journey of women of childbearing age living with chronic disease were identified: a lack of patient support, insufficient specialist discussions, suboptimal coordination of the care pathway, and the need to better empower women.

To face those barriers, a powerful collaboration between patients and healthcare professionals across multiple therapeutic areas is the cornerstone of progress. Together, their combined efforts create a synergy that goes beyond individual therapeutic area, making the journey towards solutions for chronic conditions in WoCBA far more impactful. By actively working together, we not only enhance our understanding but also pave the way for tailored and effective solutions, ultimately elevating the standard of WoCBA patient care. In the dynamic workshop environment, participants pinpointed critical steps, including the development of comprehensive information resources for HCPs and patients. The focus extended to strengthening collaboration among specialist HCPs through a multidisciplinary team approach and the establishment of patient peer support groups.

At ��ֳ�, we are committed to continue collaborating with expert groups, patients, and HCPs. Our goal is to improve the healthcare experience for WoCBA who are living with chronic diseases.

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WoCBA Patients chronic inflammatory diseases

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Cultivating a patient-centered approach to epilepsy research

Chiara Vona — Tue, 28 Nov 2023 10:04:42 +0000

Cultivating a patient-centered approach to epilepsy research

Andrea Wilkinson, Global Patient Engagement, Global Epilepsy & Rare Syndromes

Chiara Vona Tue 28/11/2023 - 11:04

For more than three decades, we’ve been committed to people living with epilepsy and their families, providing a portfolio of innovative patient centered solutions for those in need.

Any research and treatment development journey at ��ֳ� starts with identifying the patients’ unmet needs. Patients or people living with an epilepsy diagnosis, and their caregivers, are the true experts of their condition and it is their narratives that shape our scientific journey.

So, before we go into any clinical trial, we make sure we have an in-depth understanding of the persons experience of living with the disease to better understand how a medicine is going to help the patients and their families.

In the evolving landscape of epilepsy research, a profound shift is underway at ��ֳ�. We are delving even deeper into the multi-faceted experiences of people living with a range epilepsies and rare syndromes. We also aspire, in epilepsy, to bring disease modifying medications to improve patients’ lives with potential for curative therapies.

We are looking beyond the seizures at the other co-morbidities that add to the burden of disease to explore the holistic impact of certain medications on the daily lives of people living with epilepsy. We recognize the uniqueness of each epilepsy journey, acknowledging that no two experiences are identical, and see this as a challenge that we will overcome together with the patient communities.

Targeting the true unmet needs of those dealing with seizures can be challenging. For starters, there are different racial, ethnic, age groups, and socioeconomic backgrounds that need to be factored into the patient experience. As part of our research, we focus on areas of unmet need, in the hope to find inclusive representation of refractory patients and those living with rare syndromes. As we approach medicines in development and commercialization, we work to meet the needs of the varying, low-prevalence patient populations.

For instance, during our post-trial commercialization work, we secured insights from varying ethnic and socioeconomic backgrounds, including single and married caregivers to better understand logistical challenges of daily life. To bridge the gap even further, we collaborate with patient advocacy organizations to be as inclusive as possible. However, we acknowledge there’s a natural selection of advocates who have the bandwidth to engage with patient organizations; they tend to be in a higher socio-demographic bracket, which can bias our research.

To combat this, we must check our own unconscious bias and diversify who and where we conduct our research. We are making a conscious effort to ensure these groups are not overlooked by bringing services and accessible information to hard-to-reach communities. A small step begins with ensuring the language we use is universally understood. Patient and caregiver facing materials that ��ֳ� produces for the patient and caregiver community need to be understood by an eight-year-old. We want to provide information to as many people as possible, regardless of their education, age, race, and socioeconomic background.

It is imperative for patients and caregivers to influence every aspect of the development and post-market access of our new treatments. The patient's voice is changing the way medicines are being created and it's incredibly inspiring to witness and be part of this at ��ֳ�.

innovation

epilepsy R&D Patients

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��ֳ� Innovation in Business, Technology and Science

Chiara Vona — Thu, 19 Oct 2023 14:20:08 +0000

��ֳ� Innovation in Business, Technology and Science

Kishan Vaghela, Business Operations Excellence

Chiara Vona Thu 19/10/2023 - 16:20

Innovation is a well-used word in the pharmaceutical industry. It has been used to describe culture, adopting new capabilities or methods, or bringing ideas from other industries into ours. Essentially, innovation does not have a one size fits all definition, but I think we can all agree it’s a critical element of progress and growth in today's rapidly evolving world.

Creating New Opportunities for Growth and Progress

The world is constantly changing, and with that comes new challenges, problems, and opportunities. Innovation allows us to adapt to these changes, and to create solutions that can make a positive impact on society. When we innovate, we are not just solving problems, but we are also creating new opportunities for growth and progress.

Innovation is not just about coming up with new ideas. It is about turning those ideas into practical solutions that have operational and customer value. This means that we should not only focus on creating something new but also on incrementally improving existing solutions to provide a tangible value to patients’ lives.

Culture of Curiosity and Innovation

To stay competitive in today's fast-paced and ever-changing market we must continue to push innovation in science. Therefore, at ��ֳ� we encourage and foster a culture of curiosity and innovation. We do this by weaving creativity and collaboration into the fabric of everything we do.

Innovation is a critical aspect of progress and growth. It allows us to adapt to change, solve problems, and create new opportunities. It is essential to foster a culture of and encourage creative thinking to make a positive impact and bring value to patients’ lives.

Find out more about innovation at ��ֳ� here.

innovation

science Patients innovation

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Evolving Expectations for Dermatological Conditions

Vanco Vlastimil (��ֳ� S.A.) — Wed, 18 Oct 2023 15:28:14 +0000

Evolving Expectations for Dermatological Conditions

Camille Lee, U.S. Immunology

Vanco Vlastimi… Wed 18/10/2023 - 17:28

Upon joining the team at ��ֳ� over four years ago, I was immediately inspired by everyone’s commitment to and passion for creating differentiated solutions for people living with severe and chronic diseases. I have always found my motivation in empowering people to manage their health, so their life can be the focus, not their disease. At ��ֳ�, we consider each person’s journey to help them achieve their own goals and live their best possible life.

Part of what I’ve found makes ��ֳ� unique is the robust research, both quantitative and qualitative, that goes into understanding the patient journey and needs, and applying these insights in every stage of the clinical development and commercialization process. We talk with people living with psoriasis and listen to what they experience, which helps us appreciate the impact it can have on their physical and emotional well-being.

At the surface, psoriasis is one of the most common autoimmune disorders, affecting approximately 7.5 million people in the U.S. alone. It causes rapid build-up of extra skin cells that form thick, silvery scales and itchy, dry, red patches. But when you dig deeper, you learn that psoriasis is more than a skin disease.

We have heard that after receiving a psoriasis diagnosis, many people feel forcibly displaced from their sense of self. People living with psoriasis often report negative mental health and social well-being, and through an online survey of 500 adult patients in the U.S., more than 90% of people with a moderate-to-severe form of the condition feel their psoriasis has a significant impact on their quality of life. They begin their care journey and oftentimes feel there is no clear destination or relief. More than half of patients being treated for moderate-to-severe plaque psoriasis don’t feel that they are achieving clear or almost clear skin and, more importantly, many of these patients do not believe this to be a realistic treatment goal. People living with psoriasis deserve better.

At ��ֳ�, we refuse to accept the conventional expectations for skin clearance. We know that increased levels of skin clearance are correlated with improvements in quality of life. Because of this, we are committed to creating accessible treatments that empower people with psoriasis to expect more from their treatment.

I’m excited by our progress in delivering these solutions and look forward to seeing the impact on the dermatology community.

about ucb

Dermatology psoriasis Patients

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Transformative Partnerships: ��ֳ�'s Patient-Centric Approach to Advancing Healthcare

Chiara Vona — Wed, 27 Sep 2023 08:52:46 +0000

Transformative Partnerships: ��ֳ�'s Patient-Centric Approach to Advancing Healthcare

Mitch Herndon, Clinical study patient engagement

Chiara Vona Wed 27/09/2023 - 10:52

We hear a lot in the pharmaceutical industry about collaborations and partnerships that are formed to drive innovation and breakthroughs. Big name partnerships are never far from the front pages, but successful partnerships come in all shapes and sizes.

At ��ֳ�, there’s one form of partnership that we’ve found to be more transformative than any other and that’s the partnership with patients. To help bring innovation to our science, we work hard to build a trusted partnership with patients. We take the time to listen and learn from patients as this provides us with insights on the personal impact of their condition. Insights that don’t come from trial data or the test tube.

Patient-Centered Insights: The Art of Listening

The art of listening goes beyond just hearing words; it involves active engagement with the speaker. True listening grants us a deeper understanding and appreciation of others' perspectives and emotions. Through empathetic listening, we can better support and show compassion.

Each person holds a unique experience and knowledge, and by attentively listening, we gain valuable insights that enrich our own understanding. The act of genuine listening allows us to learn from other’s successes, failures, and diverse experiences, expanding our knowledge beyond what we could achieve individually.

Cultivating Patient-Centricity: ��ֳ�'s Purpose-Driven Research and Development

It’s an empowering way to work. Often, in research and development, where innovations are sometimes decades in the making, you can feel extracted from the focus of your research efforts. For us, the constant feedback loop from patients allows innovation in science to thrive. It’s why we come to work: to listen, to learn, and to make a real difference to the lives of patients suffering from severe diseases, every day.

To learn more about how innovation drives everything we do visit Innovation is | ��ֳ�

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Patients innovation science R&D

Comment:

Posted by canadian pharm…, 24 October 2023

This page definitely has all the information I needed about this subject and didn't know who to ask.

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What is different for women living with epilepsy?

Chiara Vona — Fri, 01 Sep 2023 08:03:36 +0000

What is different for women living with epilepsy?

Andrea Wilkinson, Global Patient Engagement, Global Epilepsy & Rare Syndromes

Chiara Vona Fri 01/09/2023 - 10:03

From a young age and especially at the point of puberty, women are faced with societal and physiological experiences and decisions that are different from our male counterparts – such as planning for (or avoiding) pregnancy, the pregnancy months, lactation, post-partum and decades later, menopause. These differences are further complicated for a woman diagnosed with epilepsy. She has a different experience living with her disease than a man does.

Women need to consider their epilepsy treatments while preparing for the health of their unborn. They may be persuaded to undergo a C-section, and they may experience anxiety and fatigue after birth that can impact the frequency of seizures. Safety questions about breastfeeding may arise, along with so many other questions that a woman living with epilepsy must consider. Adding to these countless worries is the stress of finding accurate and relevant information during these pivotal and deeply personal moments.

The simple, but complex question of why is epilepsy different for women was the focus of a recent International Bureau for Epilepsy (IBE) event entitled ‘Women & Epilepsy’, in which I had the privilege of participating. As part of a project by IBE to empower women with epilepsy, experts from various fields were joined by women with the disease to share and discuss their lived experience of epilepsy. They shared clinical and social perspectives on how epilepsy has a unique and significant impact on women, especially once they reach childbearing age.

Neurologists, psychologists, researchers, human rights experts, industry colleagues and, most importantly, women living with epilepsy, who are experienced experts in their disease, underscored:

The clinical and ethical imperative to generate more and better standardized data to inform shared decision making on the use of medication during pregnancy and breastfeeding.
The need for intersectional solutions that go beyond medicines and include policy interventions and psycho-social support.
The importance of collaboration across the medical, academic, advocacy, and private sector communities to drive patient-centered change.
The need for a case team to enable effective communication between a woman’s neurologist or epileptologist team and gynecology team throughout pregnancy and maternity.
The lived experiences of women living with epilepsy must be foundational to any action taken.

��ֳ� is working to advance science for women of childbearing age with chronic diseases and to empower them to make shared decisions about their healthcare. Our effort in addressing knowledge gaps in the care of women of childbearing age began in rheumatology, and we are now embedding an emphasis on women of childbearing age across our current and potential future medicines.

My ��ֳ� colleagues and I are seeking to better understand and apply insights shared by people living with epilepsy and rare syndromes to bring meaningful change to their lives. In 2020, we conducted a social listening project that tracked more than 200,000 public social media posts, across six countries in the European Union and United States, over the course of a year. This listening initiative explored two key questions:

What is the motherhood journey experience of women living with epilepsy?
What are the unmet needs of women living with epilepsy?

Based on the gathered insights, we convened a multidisciplinary community of patients, patient group representatives, and physicians from different therapeutic areas.

By convening this community of experts, along with partnerships with clinical teams, ��ֳ� strives to address knowledge gaps in the care of women of childbearing age through the provision of validated evidence and quality disease management tools.

It is fearless listening, continued collaboration, and a bias for action that will bring a paradigm shift toward protecting women through research — and not from research. Furthermore, this research is just one component in meeting the unique physical, emotional, and social needs of women of childbearing age living with epilepsy.

Mothers, daughters, sisters – all women – should feel confident to request the information they need to make shared decisions about their treatment options before, during and after pregnancy. At ��ֳ�, we are working toward a future where this is possible.

solutions

epilepsy International Epilepsy Congress Patients women Women of Childbearing Age

Comment:

Posted by chelseymiranda932, 18 September 2023

This is my first time pay a visit at here and i am really impressed to read all at single place.

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Creating New Opportunities for Growth and Progress

Culture of Curiosity and Innovation

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