Together we can make a difference on World Psoriasis Day

eCMSadmin — Fri, 29 Oct 2021 15:45:00 +0000

Rajesh Gupta, Patient Value Immunology & US Solutions

eCMSadmin Fri 29/10/2021 - 17:45

As a proud supporter of World Psoriasis Day, ��ֳ� sat down with Frida Dunger Johnsson, Executive Director of the International Federation of Psoriasis Associations (IFPA), to learn more about the importance of World Psoriasis Day and how people can unite on October 29 to show their support.

“Together with our members, we share the vision of a future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities,” explains Frida. Reflecting further on IFPA’s mission, Frida confirms it is to “unite, strengthen and lead the global community to improve the lives of all people affected.” Each year on World Psoriasis Day the global community follows IFPA in this mission, coming together to raise awareness and call for action in support of people living with psoriatic disease.

As the only global organization representing and uniting all people living with psoriatic disease, IFPA continuously works to highlight unmet needs, and recently formulated five strategic goals to generate and share evidence to inform change.

According to Frida the most prominent unmet needs faced by patients with psoriatic disease relate to:

Early diagnosis of psoriatic disease
Equal access to treatment, specialists and individualized care
Training for healthcare practitioners to ensure adequate understanding of the physical, emotional, economic and social burden of the disease, as well as the impact on an individual’s quality of life
Multidisciplinary care to identify and manage common comorbidities
Awareness of stigmatization and discrimination.

Raising awareness is an important step towards combatting these challenges and making a meaningful difference to peoples’ lives. “We aim to make the world aware of psoriatic disease and the effect it has on an individual’s life, spread information and dispel common misconceptions,” Frida added.

In line with this year’s theme for World Psoriasis Day, ‘United’, IFPA is uniting individuals, organizations and IFPA partners from all countries and backgrounds to speak out from a common platform. In doing so, it hopes to empower ministers, governments, and decision-makers to step up their efforts to provide better access to treatment and care for people living with psoriatic disease. “World Psoriasis Day is a powerful opportunity to mobilize advocacy and stand united with the global community to unleash loud action and achieve targeted breakthroughs,” Frida remarked.

There are many ways to support IFPA’s initiatives on World Psoriasis Day, whether you are affected by psoriatic disease or not. Supporters can visit psoriasisday.org to add details of planned World Psoriasis Day activities to the global map, create their own World Psoriasis Day graphics using IFPA’s image generator, find out about the IFPA World Psoriasis Day Petition or simply interact on social media and join the conversation using #WorldPsoriasisDay. Frida concludes, “Any action you take brings us closer to our vision and, together, we can drive positive change for people living with psoriatic disease.”

We thank Frida for telling us more about the important ways in which IFPA is working to improve the lives of people living with psoriatic disease. At ��ֳ� we are proud to be a long-term supporter of IFPA and remain committed to working with the advocacy community to better meet the evolving needs of patients. Together, we can make a difference.

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Comment:

Posted by Frida Dunger, 29 October 2021

Thank you for highlighting World Psoriasis Day and for prioritizing the patient voice in your work.

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World Psoriasis Day 2021: Uniting for action

eCMSadmin — Fri, 29 Oct 2021 09:00:00 +0000

World Psoriasis Day 2021: Uniting for action

Jeron Evans, Patient Value Immunology & US Solutions

eCMSadmin Fri 29/10/2021 - 11:00

At ��ֳ�, everything we do starts with one simple question: “How will this create value for patients now and in the future?”

Why? Because we have a fundamental, continual commitment to enable patients, their caregivers, and their families to live their best lives. By focusing our immunology work on specific patient populations where we can make a meaningful difference, we move ever closer to achieving this.

Today, on World Psoriasis Day, we stand united with the International Federation of Psoriasis Associations (IFPA) to shine a light on the impact that psoriasis has on patients. Since 1971, IFPA has been effectively advocating for the psoriatic disease community and today its members represent over 60 million people living with psoriatic disease worldwide. IFPA aims to unite, strengthen and lead the global community to improve the lives of people affected by psoriatic disease.

Each year on October 29, World Psoriasis Day allows us to reflect on the important victories that have been achieved by IFPA and its supporters, whilst offering an opportunity to raise awareness of the many challenges and unmet needs still facing those living with psoriatic disease today.

We understand that psoriasis is more than just a skin disease. People with psoriasis can experience feelings of stigmatization, shame, embarrassment, anger and worry and frequently report difficulties at work and disrupted leisure activities. The social and emotional burdens of psoriasis, together with the visible symptoms, can significantly impact patients’ quality of life. By applying these important insights to inform our science, we can seek to deliver new options that can truly address patients’ needs and improve their quality of life.

At ��ֳ�, we are proud to be a long-term supporter of IFPA and of World Psoriasis Day, which this year follows the theme of ‘United’ – a theme that we are pleased to champion. We know that innovation cannot be delivered alone and recognize the importance of our collaborations with the dermatology community to better meet the evolving needs of patients. For this reason, we engage in partnerships with researchers, clinicians, and advocacy groups from around the globe. These partnerships also underpin our ongoing scientific and medical education programs in dermatology.

Today and every day, my ��ֳ� colleagues and I strive to advance science in immunology. By uniting to address patients’ unmet needs, support clinically meaningful research and build strong, collaborative advocacy partnerships, we can all help to make a meaningful difference for people living with psoriasis.

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World Psoriasis Day Immunology IFPA

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World Psoriasis Day

Together we can make a difference on World Psoriasis Day

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World Psoriasis Day 2021: Uniting for action

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