Today marks International Dravet syndrome Awareness Day

Vandenbruaene Nathalie — Thu, 23 Jun 2022 06:33:51 +0000

Mike Davis, Patient Value Neurology & Europe/International Solutions

Vandenbruaene … Thu 23/06/2022 - 08:33

Often described as a complex form of epilepsy, Dravet syndrome is a rare, devastating, and life-long condition that begins in infancy and is marked by frequent treatment-resistant seizures, significant developmental and motor impairments that persist into adulthood, and an increased risk of sudden death.

On this day we recognize, honour, and celebrate every advocacy organization and those dedicated families from around the world who are fundraising and raising awareness of Dravet syndrome.

By raising awareness, we can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families.

Anyone who has worked or is working with patients and families living with Dravet Syndrome knows that the condition needs to be managed round the clock, 365 days a year.

As a company we have witnessed first-hand the remarkable work being done by caregivers, nurses, doctors, therapists, and researchers to make every day a little better for Dravet patients and their families. We are acutely aware of the ongoing unmet medical need for people living with this condition, and as a company we are committed to playing our part to help.

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Dravet

Today marks International Dravet syndrome Awareness Day

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